The London Group of the SSO lost a long standing member, Jill Martin, a couple of weeks ago. From my understanding it was GI issues which ended her long fight with scleroderma. We'll miss her.
A source of information on how one person meets the day to day challenges of living with Scleroderma. I have had over 11 000 views here but virtually no comments. Would be most appreciative if some of you would take the time to at least say hello and if you find the site helpful. The above image is one of my photographs. To see more follow the link in the right panel.
Wednesday, July 7, 2010
GI Update
Been a while since I posted here so thought I'd share how I'm doing with the new formula, Vital HN. There's not a lot to say really except that I'm currently managing 4 bags or 1200 litres/day. I do two overnight at 65 ml/hr which gives me about 8 hours. The other two I do throughout the day at around 85 ml/hr. I've tried 90 ml a couple of times but started to feel some discomfort so backed off. My goal for now is to add one more bag throughout the day but unless I can get the speed up that will be difficult if I want to go out at all. I've also been drinking a bottle of Ensure Plus each day which brings me up to 1555 calories a day. Will keep working on it. My weight, incidentally, seems to be staying the same at just around 100 pounds.
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