GI Issues
Still at 110 pounds. I recently saw my GI doctor and he agreed that my lack of appetite and bloated feeling indicate that the two antibiotics I've been taking are no longer working. He prescribed erythromicin which my pharmacist says is no longer available and Cholestyramine, a powder which I mix with water and drink once a day. Hopefully this will help clean out my gut and stop the daily bouts of diarrhea. It's now two weeks later and it seems to be helping. I have been eating a little bit each day and the diarrhea is gone. The dietician also aded another 360 calories/day to my TPN bring the total to 2160. After a week, no weight gain but that's pushing it.
OT
The OT made up a gadget for my camera which enables me to use my thumb as my shutter finger without fear of dropping the camera. Works like a charm.
Walk/Run in the Park for Scleroderma
It's all coming together and there seems to be a lot of interest so I am optimistic that we'll reach our goal of $20 000.
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