Anyway, I am happy to report that the prednisone is doing its job and that I am virtually pain free. This is now day three and I feel great, have been sleeping better than I have in months, and when I finish with this blog entry, I am going to grab my guitar and give it a whirl. Yeehaw, life is good again.
A source of information on how one person meets the day to day challenges of living with Scleroderma. I have had over 11 000 views here but virtually no comments. Would be most appreciative if some of you would take the time to at least say hello and if you find the site helpful. The above image is one of my photographs. To see more follow the link in the right panel.
Showing posts with label fund raiser. Show all posts
Showing posts with label fund raiser. Show all posts
Saturday, August 14, 2010
Did I Mention I also have RA?
It just occurred to me that I may never have pointed out anywhere on here that I have rheumatoid arthritis as well as scleroderma. The reason I haven't mentioned it is that it had pretty much gone into remission. When I started having more pain about a year ago I put it down to scleroderma but am now convinced that the RA has returned. I bring this up now because of the prednisone which is not normally used for scleroderma and should, in fact, be avoided as it can cause renal failure but since I have no apparent renal involvement I guess I'm okay to take it.
Thursday, January 1, 2009
Scleroderma Society, London Chapter - 2009 Events
Here, we are, another year has come and gone and a new one has just begun. I don't make new year's resolutions but there are a number of things I want to accomplish this year.
First off, as one of two key contact people for the local chapter of the Scleroderma Society of Ontario (SSO) I am organizing an awareness/fund raising event to take place in June to coincide with scleroderma month. The tentative date is Sunday, June 7 and the event itself will take the form of a music concert with the help of three or four local blues and rock bands. I have never done anything like this before but with the help of my daughter, Lisa, and her partner Dave, who are very much a part of the local music scene, I think we're up to the challenge. Who knows I may even work up the courage to join in on a song or two myself - no promises though.
London has also agreed to host the AGM of the SSO which we will combine with our fall meeting in September. We are hoping that Dr. Janet Pope, our local and internationally recognized scleroderma expert, will be able to take time out of her busy schedule to be guest speaker.
And then there's the spring meeting to plan for as well. Exciting times for the London Chapter of the SSO.
Happy New Year everyone.
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