I really haven't been monitoring my intake very closely so can't say how much I'm getting on a daily basis but I suspect it's averaging about 1.25 l. Perhaps I'll make an effort to log my time on the feed, if for no other reason than to see if I'm actually making any progress or simply standing still. My weight is currently 113 lbs., up 2 or 3 pounds from a month ago, not spectacular but moving in the right direction at least.
A source of information on how one person meets the day to day challenges of living with Scleroderma. I have had over 11 000 views here but virtually no comments. Would be most appreciative if some of you would take the time to at least say hello and if you find the site helpful. The above image is one of my photographs. To see more follow the link in the right panel.
Sunday, September 6, 2009
GI Update III
It as been almost a month since my last update so thought I'd better add something. In general the feed continues to go reasonably well. The plan to ingest 1.5 litres of Peptamen 1.5 is a work in progress. I have increased my feeding rate to 75 ml/hour and even tried 80 for a couple of days but with an increase in bloating so backed off again. Have also experienced some bloating at the 75 rate recently and am considering doing a course of erythromycin to clean out my gut. I'll give it a couple more days to see if it takes care of itself though.
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