Wow, just noticed that my last post here was October 3. Where does the time go? I probably would have written sooner but I ended up cancelling a couple of appointments in November and December due to diarrhea. And that pretty much sums up the last few months where my main concern has been exactly that. Just recently I have made some progress using a combination of cephalex and Immodium.
I have had a couple of flare ups so had my rheumatologist call in a prescription for prednisone which, as in the past, proved to be very effective. And that brings me to my visit yesterday. First of all my rheumatologist was delighted with my weight which now stands at 131 pounds. I have not weighed this much in at least six years so, needless to say, I too am overjoyed. Thank you TPN. Also she wrote me a prescription for 200 prednisone with 3 refills, enough to last me a very long time. I will continue to reserve it for those times when the pain is at a peak.
Today I saw my GI doctor. Pretty uneventful except that, again, the dietician was pretty happy with my weight gain. I also asked to have my J-tube removed which, much to my surprise, he did right there on the spot. Only problem is that some fluids seeped out the hole where the tube had been and man did it stink. My tpn has now been reduced to 6 days a week. And that's about it for my doctors' visits.
So, generally, things are going pretty well. The last couple of days the pain has been slowly worsening so must get my prescription to the pharmacy so I'll have some prednisone on hand.
A source of information on how one person meets the day to day challenges of living with Scleroderma. I have had over 11 000 views here but virtually no comments. Would be most appreciative if some of you would take the time to at least say hello and if you find the site helpful. The above image is one of my photographs. To see more follow the link in the right panel.
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