A source of information on how one person meets the day to day challenges of living with Scleroderma. I have had over 11 000 views here but virtually no comments. Would be most appreciative if some of you would take the time to at least say hello and if you find the site helpful. The above image is one of my photographs. To see more follow the link in the right panel.
Thanks so much for posting the link to the videos. I watched 3 of them this afternoon. Sadly the physicians where I live just don't have the experience at treating Scleroderma patients. My GI system is in partial failure, as a result, I've had Pneumonitis several times. To be hospitalized with several specialists taking care of you without the experience, is frightening to say the least. I know that my time here on earth is limited but like you, I want to make the most of whatever time I have left. I want to continue creating art and enjoying time with my family. You've been a great inspiration...The way you've continued to do the things that you love. Your music and photography is a huge part of who you are. Thank you so much for sharing that with us!
ReplyDeleteCher, glad you found the videos informative. Dr. Pope, the presenter in the second(?) one is my doctor. She is respected worldwide for her research on scleroderma so I am so lucky to have her. I visited your web site and your art work is beautiful. So glad you have that to keep you occupied.
ReplyDeleteBest wishes,
Bill